Hayden was born on Friday April 15 - yes, a tax day baby! He was born at 12:26pm and was 8 pounds 15.6 ounces - which they round up so he's officially a 9 pounder. (Heather was 8, 15.4.) He was 21 inches long.
One Month (05/07/2005)
Two Months (06/15/2005)
Three Months (07/16/2005)
Four Months (08/15/2005)
Below are diary entries. Since all is well now, I have reordered them so that the newest is at the top. If you want the history, please start your reading at the bottom of the page.
Crawling better and better - still won't eat solids, but we're working on it.
Hayden began crawling today!
Hayden continues to do well. This week, he's mastering the art of blowing raspberries. He's also reaching and grabbing for things. We had a check up last week and he was 15 pounds, three ounces. I got a bigger tool for dilations and we're to go back in six weeks. Hopefully this will be the last checkup in St. Louis.
The surgery was a success. They had to remove about 20% of Hayden's colon. Two weeks post surgery, he returned for his check up and all was well. We now have some therapy to do at home where we dilate his rectum. It's only once a day, but we'll be doing it for four weeks. Then we'll go back to get a larger instrument and then we'll use that for at least another two weeks. He doesn't like it at all, but I think it's tougher on mom than on him. The good news is that he poops! And he'll be just fine as he gets older. He was 13 pounds, 4 ounces. He's a very good, happy and healthy baby. Yesterday he laughed at me... although I think the first official laugh was at Heather on Friday. It sounded like a laugh, but I couldn't see his face so I wasn't sure. But since he laughed yesterday, I'm sure his first laugh was at big sis.
Keep us in your prayers and I'll try to provide an update when I can. Hugs!
Wow! I never thought we'd make it this far at home with the irrigations. Sorry it's been so long since I've updated. Since leaving the hospital, we've been doing four irrigations (enemas) per day to help Hayden poop. The tube stays in him for a half hour and drains into a diaper. I've done some on the road, but it's not much fun so I stay home quite a bit. Pretty hard to do when you have committments and are trying to build a house. Last Thursday (a week ago), he weighed 11 pounds 7 ounces - so I'm sure he's over 12 pounds by now. Surgery is scheduled for June 28 at St. Louis Children's. The surgeon is Dr. Foglia.
There are now some pics up in the gallery. Be sure to check them out.
After posting this update, later that afternoon, the docs came around. The pathologists confirmed the diagnosis of Hirschsprung's. However, they docs want Hayden to gain weight before having surgery. Therefore, all the tubes were taken out and we were to start feeding him. That was about 7pm Tuesday. Today, Wednesday, we're continuing with the breastfeeding and giving him enemas so that he can have bowel movements. They're going to keep us here for a couple of days to make sure that he's gaining and handling that well. The earliest that we would go home would be Friday.
The surgeon wants him to be close to nine pounds and if he's handling things really well, would really like to see Hayden go up to twice his birth weight. Therefore, surgery to correct the problem may take place in 11 days or so, or may take place in three months. We'll just have to see how he does at gaining weight and if the enemas are relieving him. FYI, this morning, Hayden weighed just 7 pounds 9 ounces. Hope he weighs more tomorrow.
We took him home on Sunday the 17th. He was starting to get a little jaundice so we took him to the nurse practitioner on Monday and then to the lab for tests everyday after. On Thursday the 21st, we met with our doctor and he decided to admit him. Hayden had only had one bowel movement and was very lethargic and not eating well. His weight was down to 7 pounds 11 ounces and billirubin levels were up.
We were admitted to Carle in Champaign on Thursday the 21st. By Saturday, the billi levels had come down, but we were all still really concerned about his weight and distended tummy. He had a series of x-rays with contrast dye and it was decided that he had a bowel obstruction. On Saturday, we were transferred to St. Louis Children's Hospital.
I'm now writing this from the St. Louis hospital. Today is Tuesday (my birthday). Yesterday, Monday the 25th, Hayden had a biopsy of his lower colon. As I write, we're waiting for those test results to come back. This will most likely confirm the diagnosis of Hirschsprung's disease. If so, we hope to have surgery scheduled for tomorrow. Hayden has been without food and has been on IV's for fluids since Saturday morning. Poor little guy sucks and sucks on his pacifier and nothing comes out.
Anyway, that's all we know for now. Good thing we've had lots of experience sitting around hospitals, otherwise, I think we might be going nuts. Wish I could upload some pics for you all, but I can't really do that from here.